Little Karson was born with many health problems, and his family has already accepted that they have to say goodbye to him for good. The boy’s grandmother, Lisa Hough, shared her grandson’s amazing story on social media. She said her daughter, Chelsea, made a terribly difficult decision when she agreed to have her son taken off the ventilator.
“The only way to describe what happened is that this beautiful little boy sᴜꜰꜰᴇʀᴇᴅ two very rare ᴛʀᴀᴜᴍᴀs that are completely unrelated,” Hough wrote on Facebook. She described that he had a ʜᴇᴍᴏʀʀʜᴀɢᴇ in his grandson’s left temporal lobe, and at the same time, he was also diagnosed with a ᴍᴇᴛᴀʙᴏʟɪᴄ ᴅɪsᴏʀᴅᴇʀ, ɴᴏɴ-ᴋᴇᴛᴏᴛɪᴄ ʜʏᴘᴇʀɢʟʏᴄᴇᴍɪᴀ.
This means that glycine, a protein-building amino acid, is present at abnormally high levels in the body. Excess glycine accumulates in tissues and organs, especially the brain, and this causes sᴇʀɪᴏᴜs ɴᴇᴜʀᴏʟᴏɢɪᴄᴀʟ problems.
According to doctors, in Karson’s case, the ɴᴇᴜʀᴏʟᴏɢɪᴄᴀʟ ᴅᴀᴍᴀɢᴇ could be so severe that he would function at the level of a 2-3-month-old child for the rest of his life. After listening to the doctors’ opinion, the mother finally agreed to disconnect Karson from the machines.
“While we weren’t ready to say goodbye to Karson, we accepted the inevitable,” Hough wrote.
“We were given 10 minutes after the machines were turned off and were warned that he was not going to breathe on his own and that his heart would stop in those 10 minutes. They disconnected him from the machines at 3:00 this afternoon. But God and Karson had other plans,” said the grandmother.
Once the ventilator was turned off, Karson’s heart rate returned to normal and he began breathing on his own.
“Now, 5 hours later, here we are with this miracle baby who was told he would never breathe, swallow, or survive. He’s breathing without help,” Hough wrote.
The doctors could not give answers to what happened. Their only possible explanation was that a miracle had happened.
“I don’t know why I ever thought we didn’t deserve a miracle. I don’t know how much time we have with him, but he is here with us now,” the grandmother wrote.
A friend of the mother has also set up a GoFundMe page to support the family, and family members regularly share updates on Karson’s condition on Facebook.